Having a rare disease is difficult, but it’s even worse when the threat is unseen. People with this autoimmune disease may appear healthy but are under attack from their own immune system and there is a high acute mortality risk.

Our Campaign

We collaborated with patient associations to co-create an emotive campaign that uses art created by a person with the disease, and real patient stories to build awareness, empower, and drive action.

By reflecting the patient voice and perspective through our multimedia campaign that was rolled out across Europe, we were able to raise awareness of symptoms, journey to diagnosis and treatment pathways, as well as support both patients and carers.

Our unique partnerships with multiple patient associations across Europe allowed content to be created not just for, but by, patients – truly reflecting their often-forgotten voice.


website visitors


patient video diaries watched


patient stories downloaded

The Outcomes

Our co-creation campaign increased awareness of this rare disease and maximised reach to the often-isolated patient population.

We provided both the patient and carer communities with resources and materials of value.

We reflected the patient voice and perspective, and the reality of living with this condition through first-person testimonials.


Orphan drug launch

Transforming standard of care

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Patient identification

Accelerating time to diagnosis

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